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  • Advisory Board Members
  • Open source platform for non-profit: the Cure2Children experience

    At the end of 2006 I began my collaboration with Cure2Children. We had to develop the IT infrastructure, with the following requirements:

    • Geographically distributed teams: C2C operates in several countries, for example Pakistan and Italy
    • The C2C italian team is itself "distributed": some work in Florence, others in Milano, so they need a shared collaborative space
    • Use of open source software: we want to share with others the solutions that we could develop for our projects
    • User friendly environment: no power user in the organisation
    • Low cost

     

  • CDATA project

    Clinical setting is a peculiar and complex environment. Traditional approach is based on a relational database model and it becomes soon a maintenance nightmare when data forms change fortnightly. Cdata tries to address these issues and aims to be a simple and flexible tool to build a clinical content repository and a web collaborative workspace.

  • About us

    Cure2Children (C2C) is a non profit, apolitical, and secular organization providing support to developing countries’ health professionals caring for children with cancer and blood disorders.

  • Vacancies

    Pakistan

    Cure2Children Foundation and Pakistan Institute of Medical Sciences (PIMS) are jointly collaborating to set up a bone marrow transplant unit at Children’s hospital (PIMS). This would be a private partnership project.

    Job titles

  • Partnerships and Memberships

    Partnerships

     

  • The treatment of the first child in Pakistan

    After almost two years of preparation, on the 27th of August 2008 the first child (Aslam, 3 years old) has been hospitalized in the National Institute for Blood Diseases in Karachi (http://www.nibd.edu.pk). He will be treated for thalassemia and undergo a bone marrow transplantation under the direction of  Drs. Tahir Shamsi and Saqib Ansari.

  • How to help us

     Spread the word!


     

    You can help us just putting one of our badges on your website or blog! You can find them in the badges page.
     

  • Visit to the Pakistan Institute of Medical Sciences

    It’s the second time I am at the Pakistan Institute of Medical Sciences (PIMS), the largest governmental academic hospitals in Islamabad and one of the main medical institutions of the country. In February 2007 I visited the Thalassaemia and Heamophilia Centre and met Dr. Tahira Zafar, its Director. I was very impressed by her work and invited her to the workshop we organized in Siena last March.

  • Project Pakistan: the National Institute of Child Health

    The Children’s Hospital is a large clinical facility with more than 400 beds with all major paediatric medical and surgical subspecialties. The oncology service is very active with 350 new cases a year, mostly leukaemias (50%), but also lymphomas, wilms tumors, retinoblastomas, neuroblastomas, germ cell tumors, bone tumors and soft-tissue sarcomas.

  • The last days in Pakistan

    July 9, 2008. To get from Islamabad to Lahore I booked a taxi, it’s quicker and less expensive. I am curious to make this trip and enjoy some site-seeing, a little less than 400 km of well-kept comfortable highway.

  • Project Pakistan: meeting with the Director of the Pakistan Medical Research Council

    On Monday June 20 we have an appointment with Dr. Huma Qureshi, Executive Director of the Pakistan Medical Research Council, and Dr. Rashid Jooma, Director General Health.

  • Project Pakistan: the Shifa International Hospital

    Shifa International Hospital is probably the best private hospital in the capital. It has been around for 15 years and was founded by physicians who returned from training in the US.

  • Jason Michel, English language teacher

    English language editor

  • Antonio Frecentese, attorney at law

    Director, Legal Affairs

    Specialty: Third sector, Project Management

     

     

    Qualifications

    ATTORNEY AT LAW: Member of Italian Law Society Bar Association. Specialist in commercial law and company law. Many Collaboration in various Italian Law Association

  • Contact us
  • Thalassemia projects

    A collaborative network to cure thalassemia: to support the development of a thalassemia transplant network in Pakistan by providing financial and professional support to 5 selected institutions starting no later than mid-2008. The endpoint is to obtain at least an 80% thalassemia-free survival rate in the total group of 30 patients.

  • Project Pakistan: visit to Badin

    Badin is a semi-rural city of approximately 150,000 inhabitants, 200 km from Karachi. We visit the Thalassemia Care Centre of Badin, discuss our project with Dr. Haroon Manon, the centre coordinator. We meet almost twenty families and I am very impressed how well this children are cared for.

  • A stem cell transplant network in Pakistan

    Thalassemia major is the most common life-threatening genetic disease. Even though long-term supportive care with regular red cell transfusion and intensive chelation therapy for iron overload may prolong life-expectancy to the fourth decade of life, bone marrow transplantation remains the only curative option. Appropriate supportive care is quite expensive and may not be regularly available in most low-income areas. Without transfusion support children rarely survive beyond 5 years and with transfusions but no chelation therapy life expectancy rarely extends beyond adolescence. The overall costs of long term supportive care are well above those of transplantation, this trend will most likely increase over time as chelation therapy becomes more expensive while transplant procedures tend to become simpler and more tolerable.

  • C2C launches in USA

    We are pleased to announce the opening of the Cure2Children Foundation USA Branch in New York City. As of January 23, 2008, C2C is recognized as a legal corporation.

  • Thalassemia in Pakistan workshop

    Siena, March 27-28: The Cure2Children Foundation hosted a two day conference to discuss the Pakistan project. The project is a collaborative network to cure thalassemia and to support the development of a thalassemia transplant network in Pakistan.

  • MA2P dinner for Cure2Children

    MA2P (Medical Aid to Pakistan) organised a charity event for Cure2Children in London. Saturday April 26th I arrived at the Brantford Holyday Inn, the meeting hall was beautiful and very quickly filled with approximately 300 people, more than expected, including the MA2P board of trustees, business man, journalists, physicians, and many other people interested to do something for their home country.

  • Health On the Net Code of Conduct compliance

    The Health on the Net Foundation Code of Conduct (HONcode) for medical and health Web sites addresses one of Internet's main healthcare issues: the reliability and credibility of information.

    The Cure2Children website has initiated a process of accreditation according to the HONcode guidelines.

  • Cure2Children: what is it about?

    Cure2Children (C2C) is a non-profit organization providing free support to health professionals, families, volunteers and institutions in developing countries caring for children with leukemia, cancer and other severe diseases in compliance with shared principles and vision. The services offered will be pertinent to local realities and social values. The end is to contribute to the development of worldwide evidence-based diagnostic and management standards that may improve the cure of all children with cancer.

  • Final Balance 2007

    Revenues and Expenses

  • The Cure2Children Foundation participated at the annual Global Health Council meeting in Washington D.C.

    Dr. Lawrence Faulkner and I attended the Global Health Council conference in Washington DC, May 27th to May 31st. The topic of the week was: Community Health: Delivering, Serving, Engaging, and Leading. Over 2200 people attended and there was a simultaneous conference taking place in Geneva, Switzerland with another 1000 attendants.

  • Projects about childhood cancer

    Several institution in Pakistan manage children with cancer and leukaemia. In order to participate in international studies and increase awarenes both in the scientific community and in the Pakistani population, it is very important that the pediatric onco-hematology professionals establish a formal association fostering a collaboration among different centers. The potential patient load is extremily high as it is the potential experience and knowledge that this group could develop and contribute to the international community.

  • Pietro Sodani, M.D.

    Stem cell transplantation from partially matched related donors for hemoglobinopathies

  • Paul Szabolcs, M.D.

    Pediatric hematology-oncology, cord blood transplantation

  • Giuseppe Masera, M.D.

    Pediatric hematology-oncology, international medicine

    Professor Masera is well known for his pioneering work in support of pediatric hematology-oncology in developing countries.  He is the  founder of the Monza International School of Pediatric Hematology-Oncology (MISPHO)

  • Lawrence Faulkner, M.D.

    Pediatric hematology-oncology and stem cell transplantation

  • Ira Dunkel, M.D.

    Pediatric brain tumors and retinoblastoma

    Dr. Ira Dunkel is well known in the field of pediatric oncology and is responsible for the clinical management of childhood brain tumors and retinoblastoma at the Memorial Sloan Kettering Cancer Center in New York.

  • Franco Bambi, M.D.

    Blood banking, stem cell collection & processing, cell therapy & good manufacturing practices

    Director, Blood Bank & Cell Therapy Laboratory

    The Children's Hospital of Florence (Ospedale Meyer)

  • Franco Aversa, M.D.

    Stem cell transplantation from partially matched related donors

  • Support to the Pakistan pediatric oncology groupSeveral institution in Pakistan manage children with cancer and leukaemia. In order to comply to participate to international studies and offer the best possible care, it is very important that the pediatric oncohematology professionals establish a formal association fostering a collaboration among different centers. The potential patient load is extremily high as it is the potential experience and knowledge that this group could develop and contribute to the international community.
    C2C would like to support the establishment of a formal organization, a website, data management. In the contest of a collaborative network C2C would like to provide any expertise or equipment that will foster the availability of priority diagnostic standards such as t (9;22) and t (4;11) traslocations detection or flow cytometry for minimal disease evaluation.
  • Open source platform for collaboration in health care

    This project intends to evaluate the feasibility and usefulness of open source software applied to knowledge transfer, continuing medical education, collaborative clinical databases, decision support systems and quality management in the context of collaborations with medical institutions in developing countries. 

  • A pediatric tumor tissue bank in Pakistan This project would like to provide technical support and equipment for the establishment of a tissue bank of pediatric leukaemia and solid tumor samples. This is very important to both patients than may require diagnostic confirmation and any research project involving childhood cancer in Pakistan and internationally.
  • A thalassemia major prevention program in PakistanThis project will proceed in parallel with the transplantation program and will aim at the screening of first-degree relative of thalassemia patients enrolled in the transplantation program. In fact the carrier frequency in this selected population will probably be in the range of 30% as opposed to the 5-6% of the general population in Pakistan. Considering that the average number of children per family is 4, the total number of first degree relatives will be 30 (6 uncle/aountie plus 24 cousins). Brothers and sisters of the transplant candidate will be evaluated as part of transplant preparation.
  • Adina Salehi

    Fundraising and Family support programs

    Adina Salehi was born in Houston, Texas (United States). She holds a Bachelor of Arts in Psychology from Southern Methodist University in Dallas, Texas and a Master of Science in International Health Management, Public Policy, and Economics from Bocconi University in Milan, Italy. In 1998, she founded a non profit, Care for Kids Foundation, and raised funds and awareness for high risk children in the Dallas Fort-Worth area of Texas. Prior to joining Cure2Children, Adina worked for the Environmental Protection Agency of the United States Government.

     

  • Marino Andolina, M.D.

    Bone marrow transplantation, international medicine

  • Selim Corbacioglu, M.D.

    Pediatric hematology-oncology, stem cell transplantation and veno-occlusive disease

  • Paolo ValentiAccountant
  • Sara RomitiWeb content manager