Free HLA Typing

Free HLA Typing
Giving every child the hope for a cure.

The Free HLA Typing Project Cure2Children provides HLA-typing free of charge to low-income families that need it. HLA-typing is a test that allows you to find a bone marrow donor match for someone in need of a bone marrow transplant. This is useful for children curable by marrow or blood stem cell transpla ntation from severe thalassemia, sickle-cell anemia, aplastic anemia , leukemia and other forms of pediatric cancers and blood disorders. Since 2014 Cure2Children is partnering with DKMS Life Sciences, in Germany, which has committed to provide 5,000 free HLA typing tests (sequence-based hight-resolution A, B, C, DRB1, DQB1 and DPB1 typyng). This has enabled many families from India, Pakistan, Afghanistan, Myanmar, Bangladesh, Indonesia, Sri Lanka, Egypt, Nigeria, Iraq, Algeria, Georgia, and many other countries to benefit from compatibility testing and our organzation to improve transplant outcomes, see scientific publication on the official journal of the American Society for Blood and Marrow Transplantation (ASBMT).
 
Basic info required:

  • full name, sex and date of birth of each immediate family member (patient/s, sibling/s and parents)
  • a complete shipping address with contact number
  • patient's weight and height and underlying disease
  • any relevant social background info

Additional info for Thalassemia:

  • age at first transfusion and transfusion frequency
  • current chelation therapy with dose and regularity of administration
  • last 3 serum ferritin levels
  • liver and spleen size on abdominal palpation
  • HIV, hepatitis C and B status
  • any other relevant medical history, lab result or physical examination finding
  • hemoglobin, MCV and hemoglobin electrophoresis of both parents 
  • if the family has been counseled about cure by BMT as well as thalassemia prevention

Additional info for Sickle Cell Disease: 

  • number of painful crises per year
  • other complications related to SCD
  • current therapy
  • any transfusions
  • hemoglobin, MCV and hemoglobin electrophoresis 
  • HIV, hepatitis C and B status
  • any other relevant medical history, lab result or physical examination finding
  • hemoglobin, MCV and hemoglobin electrophoresis of both parents 
  • if parents have been counseled about cure by BMT as well as SCD prevention

HLA kits will be shipped to you and consist of simple inner cheek swabs which are already pre-labeled and bar coded according to the information you provided. Collection is quite simple, consent forms and shipping instructions are also provided. For further information and to request free HLA Typing contact hla@cure2children.org.

Updated 9 October 2017