Global Neuroblastoma Network

Global Neuroblastoma Network
Network for research and improved treatment of Neuroblastoma.

The Global Neuroblastoma Network
As the world become better prepared to deal with communicable diseases and disorders, cancer emerges as a major cause of death and disability in developing countries, where health systems are often poorly equipped to deal with this challenge. Given the relative rarity of pediatric cancer, it is critical to pull together the international community of professionals dedicated to pediatric oncology. This is particularly important for neuroblastoma (NB), which remains the first cause of childhood death due to cancer. The Global Neuroblastoma Network (GNN) is an initiative involving several institutions and professionals worldwide aiming to:

  • Improve the cure of children with neuroblastoma in emerging countries
  • Facilitate palliative care for children with incurable neuroblastoma
  • Establish a global network for neuroblastoma care and research

GNN promotes interaction among professionals dedicated to the cure of neuroblastoma in children primarily through:

  • Knowledge-sharing and consultations at Cure4Kids GNN group page
  • Support for data management via the Pediatric Oncology Network Database

The Problem Being Addressed:
Not enough is known about this rare form of pediatric cancer, neuroblastoma. The limited number of cases and geographical distance between them makes it challenging to diagnose in limited-resource settings, to learn from past experiences, and to create best practices for future application.

Project History:
GNN project was created by the world’s leading neuroblastoma experts and includes highly reputed institutions such as University of California at San Francisco (Dr Kate Matthay), St. Jude’s Children’s Research Hospital (Drs Scott Howard and Catherine Lam) and Connecticut Children’s Medical Center (Dr Nehal Parikh). This initiative is connected to the International Society of Pediatric Oncology in Developing Countries (SIOP-PODC) currently led by Dr Scott Howard, and builds on the experience of the Cure2Children Foundation.

For more information about Global Neuroblastma Network (GNN), please visit the GNN website - http://www.globalneuroblastoma.net/

Major Achievements:

  • Establishment of a worldwide cancer registry specific to neuroblastoma and mobilization of prime international neuroblastoma experts which sharply increased interaction of pediatric oncologists involved in neuroblastoma worldwide.
  • Over 140 professionals registering close to 500 neuroblastoma cases are currently enrolled in GNN leveraging on the St. Jude Children’s Research Hospital’s outreach program based in Memphis, USA.

Project Partners:

  • University of California at San Francisco
  • St. Jude’s Children’s Research Hospital
  • Connecticut Children’s Medical Center
  • Children’s Cancer Hospital of Egypt
  • Children’s Cancer Centre of Beirut
  • Shaukat Khanum Memorial Cancer Hospital and Research Centre
  • Rabat Children’s Hospital of Morocco
  • International Society of Pediatric Oncology in Developing Countries