Archive for category Screening
First visit to Madurai, India
Posted by Lawrence Faulkner in India, Prevention, Screening, Thalassemia on January 19th, 2010
By Lawrence Faulkner
Naren found us on the internet, he is the project manager of Nivethan Trust, an organization based in Madurai, which deals with child care in several areas, one of which being thalassemia. Madurai is a city of Tamil Nadu, in southern India, in which about 4 million people live in the urban area, where although there are many children with thalassemia, there is no true centre that follows them in an organized way. They are assisted by several doctors none of which have specific interest or expertise.
I arrive at 1pm on the 15th January, we are on the ninth parallel above the Equator, a tropical area with a temperature of 25-30 degrees in January. Naren easily recognizes me at the airport (we have already been introduced on Skype), and takes me to a hotel in the centre where I meet with Mr. Ramalingam and other members of Nivethan. We discuss the 2 day program.
The next day a visit to the government hospital in Madurai and a meeting with some parents, who I am presented to by Professor Murugalatha and Professor Shanmugasundaram of the Pediatric Department. The parents have many questions about the therapy and in particular on the possibility of a cure for thalassemia with bone marrow transplantation.
I visit the blood centre headed by Dr. Velusamy, the pediatric oncology department headed by Dr. Rajaramesharawn, where they treat mainly leukemias (solid tumours are managed by surgeons). At 12pm a meeting with a group of young doctors and later we go to visit another private hospital founded by a Catholic mission. In the afternoon we are expected at Keelamathur village, 8 km from Madurai, where I have the honour to inaugurate a small computer centre with computers donated to the Thiyagam Women’s Trust association, which deals with the training of women with disabilities. The Coordinator, Mrs. Amutha Shanty, herself disabled, is a very communicative, sweet and energetic lady.
At the nearby village of Kodimangalam Pudur another ceremony was prepared for the occasion of Pongal, the festival of abundance and harvest. Here too the Thiyagam Women’s Trust has organized a small after-school class attended by about twenty of the village children, some with disability problems.
Dr. Shanmugasundaram and I planted two symbolic trees, following a small ceremony in the village temple, a wonderful experience, emotional and not easily forgettable.
The next day a visit to the Meenakshi temple, we are accompanied by Mrs Rajalakshmi and Mrs Bose of the local Rotary club. This imposing temple has a very important role in Hindu religion, there are many couples who come here to celebrate their wedding as well as pilgrims from all over India. A really interesting morning and passed in pleasant company.
My visit comes to an end by making a plan on how to proceed with the screening and prevention program and the next steps. They all seem very efficient and motivated, I believe that also here in this reality we will begin something concrete very soon. Madurai has given me some fabulous emotions that I haven’t felt for sometime, I am very fortunate to have the privilege of being able to do this work and meet exceptional people. 3 stops await me (Chennai, Mumbai and Calcutta) before arriving in Dhaka in the morning.
The Screening for Thalassemia in Jaipur, India has Begun!
Posted by Lawrence Faulkner in India, Screening, Thalassemia on January 18th, 2010
by: Lawrence Faulkner
I arrived in New Delhi at 5 am after leaving Florence at 7:30am the morning before, to Rome and Fiumicino airport with a stop-over in Amman. At Deli airport a driver was waiting for me and he took me to Jaipur. It’s about 300 km that we cover in 4 hours.
I slept the most part of the journey, at 9.30 am we cross the Pink City, the historic city centre of Jaipur painted of pink, the colour of welcome, done for the visit of King Edward of England in 1886. At 1pm Rachna picks me up and takes me at the home of Mrs. Parnami where a sumptuous lunch has been prepared for a group of guests. We spent the afternoon working on the database with Dr Priya, Ashok Chanclani (has a child of 4 years with thalassemia) and Himendra Mittal, 31 years old and ‘oldest’ thalassemic of Jaipur.
The afternoon ends with a visit to the laboratory were blood samples are sent for screening. The day has been intense and fruitful, I have no doubt that the program for screening and prevention of thalassemia in Jaipur has begun.
The next day, is a major holiday, the Kyte Jaipur Festival. The sky of the city is filled with kites of all colours, the centre of the event is at the Chaugan Stadium. Ashok is involved in the organizing committee and introduces me to everyone. I even got to ride in a cart pulled by camels. Fantastic! On Ashok’s scooter we go back to Prem Niketam, leaving the stadium I even got an official salute from an elephant. After having discussed with Ganesh, Rachna and Mrs Parnami future programs, they take me to the airport where I’ll get a flight to Mumbai and then the next morning to Madurai.