Cure2Children: what is it about?
Cure2Children (C2C) is a non-profit organization providing free support to health professionals, families, volunteers and institutions in developing countries caring for children with leukemia, cancer and other severe diseases in compliance with shared principles and vision. The services offered will be pertinent to local realities and social values. The end is to contribute to the development of worldwide evidence-based diagnostic and management standards that may improve the cure of all children with cancer.
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The treatment of the first child in Pakistan
After almost two years of preparation, on the 27th of August 2008 the first child (Aslam, 3 years old) has been hospitalized in the National Institute for Blood Diseases in Karachi (http://www.nibd.edu.pk). He will be treated for thalassemia and undergo a bone marrow transplantation under the direction of Drs. Tahir Shamsi and Saqib Ansari.
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Project Pakistan: visit to Badin
Badin is a semi-rural city of approximately 150,000 inhabitants, 200 km from Karachi. We visit the Thalassemia Care Centre of Badin, discuss our project with Dr. Haroon Manon, the centre coordinator. We meet almost twenty families and I am very impressed how well this children are cared for.
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The agreement with the Pakistan Institute of Medical Sciences
Things are moving, after meeting with the administration and going over several issues relating to personnel, finances, and structural issues we signed an agreement which also had the approval of the Pakistani Government health authorities. We are particularly satisfied because PIMS would be the first civil government hospital in Pakistan offering BMT. Dr. Abdul Majid Rajput, Executive Director PIMS and his staff are very committed and we are aiming at starting with the first transplant by November.
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Cure2Children's BMT Nursing course in Islamabad
After almost two years we have the feeling that the engine is running. Our first child (Aslam), a two-years old with thalassemia, has undergone transplantation 8 days ago at the National Institute of Blood Disease of Karachi. Our team is expanding: Roberta Caraher, Pietro Sodani and Cristiano Gallucci participated in a short training session on bone marrow transplantation support care for nurses held at the Pakistan Institute of Medical Sciences (PIMS).
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The last days in Pakistan
July 9, 2008. To get from Islamabad to Lahore I booked a taxi, it’s quicker and less expensive. I am curious to make this trip and enjoy some site-seeing, a little less than 400 km of well-kept comfortable highway.
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Transplant network in Pakistan
Thalassemia major is the most common life-threatening genetic disease. Even though long-term supportive care with regular red cell transfusion and intensive chelation therapy may prolong life-expectancy to the fourth decade of life, bone marrow transplantation remains the only curative option.
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CDATA project
Clinical setting is a peculiar and complex environment. Traditional approach is based on a relational database model and it becomes soon a maintenance nightmare when data forms change fortnightly. Cdata tries to address these issues and aims to be a simple and flexible tool to build a clinical content repository and a web collaborative workspace.
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